And I said, 'Well, I understand, but I think I'm going to go.' And I don't know, sometimes just the tone of somebody's voice, if they could be a bit more friendly before they switch off to do their job it would be better I think. The lady that scanned me first of all at Which filled me with joy. To comment on this thread you need to create a Mumsnet account. So if youre pregnant, theres a 50% chance that youll get bad news at your 20 week scan. For example, about 1 in 20 babies are born with a heart defect. Many do well but I do recognize that a genetic disorder can definitely complicate the picture. Yes and it turned out that the worry caused was worse than the actual news. There is an amzing group for CDH on fb i used to be part of it. I am sorry to hear your news. Looking back at that would you have liked her to do it differently? She said, 'It can also be a marker for I'd been, 'This is the head, this is the legs'. 12/12/2012 22:41. If the problem is serious, you may be admitted to the hospital or referred to another facility for further testing and evaluation. And it was the first time that somebody had kind of referred to the baby in a sort of a soft way. Please whitelist our site to get all the best deals and offers from our partners. They spent a lot of time in and out of hospitals especially in first year. Because it's almost like as soon as they recognised that there was a problem with the baby, it wasn't a baby any more, for them. The woman was good in a sense. If there are any problems found at the scan, you will be offered further tests or referrals to specialist services. It was quite sort of I mean, like with the dilatation of the kidney, it was explained to us, because it looked at the time on the scan that we were going to be having another little boy, which is how it turned out, she said, 'It's quite a common thing with little boys at this stage of scan for them to have slightly dilated kidneys if they've got a constriction in the urethra'. The scanning procedure is generally well tolerated by most pregnant women and taking breaks during the scanning procedure is usually not necessary. I will go and get the consultant and the midwife to come and have a chat with you and explain it in more detail'. One of the more common culprits of butt pain is a perianal abscess, which is basically a pimple on steroids that camps out near your b-hole. I cried, still cry. Parents who later decide to end the pregnancy have few mementoes of their baby, and several would have valued a scan photograph to keep, but this may not be offered and in their shock parents may not think to ask or may feel too embarrassed. Was your pregnancy totally normal up this scan? So that just left the talipes. Some parents say if things seem okay at delivery then to do it all, but choose not do ecmo if it comes to that level of needs for their baby. The scan takes around 30 minutes to complete and is usually done by a trained sonographer. Oh well, there's probably nothing to worry about. 2005-2023Everyday Health, Inc., a Ziff Davis company. ultrasonographer to look. Were not sure where to go from here. friendly and jokey. And so I went in, and that's when I found out. Oh, right, okay. You get extra care and monitoring as appropriate and baby is proactively treated. The scan is usually carried out by a sonographer, who is trained in ultrasound scans. I do not mean to discourage you with telling you this but also ive seen a lot of secsess storys as well. But I mean, we didn't know at that point that there were any problems, so I mean we sort of said to each other, 'Well, I hope everything's okay', you know, because - and my husband just sort of went, "Oh yeah, yeah", because he's a bit, sort of - I used to be a nurse, so yeah, I Check for twins or multiple births. So if youre waiting for your 20 week scan, dont be too anxious. But you will get to a point when you will be okay!! A Rising Inflation Rate Is Good News For? This can be a great way to share your experiences and connect with other parents who understand what youre going through. It's wriggling about. However, the 20-week scan can sometimes pick up problems. We're really, really hoping for some answers and clarity. And then he came back again and he said, 'Oh, and I can't see it's kidneys, and I can't see it's bladder. This was a routine repeat scan because at the previous scan the baby was in an awkward position. Youre absolutely right about being caught off guard. After about 13 weeks, miscarriages are uncommon. That's never ideal. She will be 4 next week and lives with a pacemaker. And she did the right thing by bringing us back and sending us for walks and, and She weren't talking me through bits like I'd had in Then boom. Its pretty serious hes about 14 months, eats with a feeding tube and has limited mobility. Like theyre pretty sure its not part of a bigger genetic problem? Im so sorry you are going through this- how devastating wishing you the best possible outcome . Is your babys CDH isolated? They didn't say the head was slightly large, or anything. She said 'His brain's not formed properly, and his heart's not formed properly, and he's got no stomach and no kidneys and no bladder, and he's small for his age, and he doesn't have this part of his arm and his hands are malformed and he doesn't have the sort of upper part of his legs either.'. I take that as a good For example, around half of all babies with congenital heart disease are diagnosed through pregnancy ultrasound scans. The vast majority of babies are healthy and do not have any major problems at the 20 week scan. We are so torn on what to do and it's the worst situation to be in. . Learn more about, Twins & Multiples: Your Tentative Time Table. I feel that what should have been the best few months of our lives have suddenly become the worst, fraught with grief and fear and uncertainty. Theres many options. It was very much, you know, even at that stage, it was very much, 'He's doing this' not, 'It's doing it'. I am so sorry mama that you are going through. thank you for that perspective. to assess the babys size and growth. But the scary part is that the amnio results will not tell us for sure. The main purpose of the 20 week scan is to check for any birth defects or abnormalities in the baby. This can be a difficult time, and it is important to have people who you can lean on for support. I really cannot imagine anything worse, except perhaps continuing the pregnancy only to give birth to a baby who will only ever know suffering and pain and who will never make it out of the NICU. And he was gone for about, I don't know, 10 minutes? Its important to remember that most babies are born healthy. SO much upset and needless angst has been caused by 'soft markers' found at scans. Determine the position of the placenta And it's sort of like they passed, just passed that assumption onto us as well, that we wouldn't be interested in it as a baby either. Was just speaking to a colleague at work about buying my pram this week and she said 'why are you buying so early? A 20-week prenatal Oh well, sometimes that does, you know, that can happen,' because babies at - I can't remember what, what stage in their development - but start to drink amniotic fluid, so you can see that in their stomach and you can see it in their kidneys, and he said - and their bladder - and he said, 'Well, we'll Estimate the due date My Story: Aging and My Role as a Geriatric Social Worker. My son has lissencephaly. This helps to get clearer images. select one: Which set of characteristics will produce the smallest value for the estimated standard error? come back. The sonographer will take measurements of the baby and look for any abnormalities. We live in the San Francisco Bay Area and apparently UCSF has an amazing children's hospital with experts that specialize in the treatment of CDH. - because I'd not have, he's going to have to spend his life with these funny hands, and how awful that would be. And I thought at that stage my husband came over to me and I just burst into tears, I mean I was just having hysterics, absolute hysterics. Several people began to suspect something when the scan seemed very long, staff were talking amongst themselves or when they were told they needed to have a repeat scan. And completely devastated. Vscode No server install found in WSL, needs x64. miscarriage. Assess the babys growth CDH came as a surprise at almost 33 weeks. video of your baby, ask the hospital or clinic what it offers. The Try joining the CDH support group on facebook. In fact, 1 in 20 pregnant women will receive a diagnosis of a major birth defect at their 20 week scan. However, it is important to remember that many birth defects can be treated successfully if they are detected early. Yeah, I The scan is performed by a sonographer, who is a trained professional that uses ultrasound equipment. My Story: Becoming a Heart Health Advocate. I would have appreciated, 'Yep, We were really hoping the CDH could be fixed (which it could, had that been all they'd found). Im so sorry mama . She said she'd get the consultant to have a chat with us and refer us then to a more detailed scan at another fetal unit. This educational content is not medical or diagnostic advice. Check the amniotic fluid levels We left for home feeling completely numb. I've got some This includes conditions that may need treatment or monitoring after birth, such as: -heart defects The clinic advised a follow up scan the week after, to check on progress and to see what to do next. You know, can I? What if there are problems? My son was found to have brain abnormalities and high fluid. And I said, 'No,' and he said 'Oh. The purpose of the 20-week scan is to: Check that the baby is developing normally But for some women, the scan brings bad news. The sonographer will put gel on your tummy and then move a handheld device called a transducer over your skin to get images of your baby. It can also find some problems with the placenta and umbilical cord. Seek professional help if you feel like youre struggling to cope. You know, maybe that was me sort of reading between the lines, but I felt no pressure from them to Replace the underlined word with the correct form, How do you play Roblox on a Chromebook without downloading it, the first trimester at around 11-13 weeks. Which of the following allows different operating systems to coexist on the same physical computer? And the scan was, seemed to be going fine and then they noticed that the stomach was collapsed. I don't know how I'm going to bring myself to walk through those doors 5 months pregnant, knowing that when I walk back out I will be empty and without my baby boy. She said, 'I'll leave you for a few seconds and I'll go and get the midwife to come in and have a chat with you so, you know, you sort yourself out and we'll move you to a side room and, you know, you can go in there'. My daughter is another thing that keeps me going. (Of course some parents might not wish to know the baby's gender, and staff should check this first). I spent a My Story: Becoming an Endometriosis Advocate. Sending you much love . Left us by ourselves. One woman described her anxiety in the waiting room between scans, and would rather have been told immediately that they suspected hydrocephalus. 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